Wednesday, October 28, 2009


So, one of the characteristics of Down Syndrome is the low muscle tone (hypotonia). E. needs work in every area to keep her muscle stimulated to work like those in genetically unenhanced (e.g., "normal" kids) do.

This summer, our PT thought it would be a good thing for us to try orthotics, and recommended Sure Steps. We picked the daisy flowers because we like to call E. our petite little flower.

When we met with the guy (orthoist? I'm not sure what he's called other than Dan) at Cole Orthotic Pediatric Center, he asked if we were looking at orthotics because E. pronated (a typical issue for kids with low tone). I said yes, that it was a concern, but that I thought the greater issue was her ability to hyperflex her ankles. This flexiblity has been noted by many, including her pediatrician at her first well check (at 2 weeks old). Dr. M said that it was likely her feet were folded all the way back to her shins in utero.

Did I mention that E has teeny, tiny little feet? She wears a size 4 shoe only because it needs to fit the orthotics. Here's her orthotic with a 8 bump (e.g. 2x4) Lego piece shown for scale.

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