Saturday, June 27, 2009

The War on Ignorance

In February, our Physical Therapist (PT) put E in a walker. We'd been working on progressing through various gross motor milestones and it was time to begin working upright.

While filming her on my camera phone, I thought nothing of the fact that she was in a walker or uses an assitance device. Where before having E, I would have looked at a child and thought something pitying ("oh, how sad") and some gratitude that it wasn't my child. What an ass I now realize I was (okay, still am sometimes), because I didn't feel pity for my child for using a walker. I cheered and laughed and was so excited to see her have the use of equipment that would help her. I was grateful, so grateful for people who think about how to provide therapy and therapeutic equipment for kids (and adults).

I felt rather proud of myself that I can realize the juxtaposition of these ideas. That I realize that people might view the video above and feel sadness or pity towards my child; and I'm a little smug knowing that they are the ones to be pitied because of their blinders (you know, the ones I used to wear, or so I thought).

Now, I should digress and let you know that we have a standing PT appointment on Tuesday. Generally, we see familiar faces of other kids who are seeing other therapists (speech, PT, occupational). There's a kind of protocol of smile and acknowledge, but no one really talks about the various conditions/circumstances that bring kids to the center.

There's a baby girl (probably 9 months old) who has been coming in with her dad. I'm not sure what her circumstances are, but she seems to have some physical limitations and I have yet to really see her alert. However, her dad (and sometimes her mom) are there every week.

At Tuesday's meeting, we worked on walking in the walker (now with no seat), climbing stairs (E loves!) and the treadmill. The room we were in, though, had other various equipment, but mostly the kind of wheelchairs that provide full body support. We carried on, trying to give them privacy while also working on our issues (the room is the one with the stairs equipment). As it transpired, though, they were putting the little girl in one of the wheel chairs.

Despite what I know, I still had that moment of sadness tinged with pity. I would like to know more about her and her family (the questions I would ask, though, may not be the obvious ones now....that's for another post), but the whole privacy thing (and HIPAA) prevent it; not to mention that we're there to work on E and not socialize. Anyway....the point is, I had that moment of pity coupled with gratitude that their circumstances seemed, to me at least, to be harder than mine. I was grateful that our little E was not being fitted for a wheelchair.

Then, as we were moving to the room where the treadmill was, I saw the dad taking pictures of his little girl in her wheelchair; and I knew that his only thought was that this piece of equipment was going to make his daughter's life better in some way.

Thursday, June 25, 2009

Findings

Me: Why is there a pile of ripped up tissues under your bed?

M: I wanted confetti for my guys [stuffed animals].

Progress

February 3, 2009

video


June 23, 2009

video
Doesn't E look so much bigger with the piggies? Also, this video needs the Top Gun theme song playing in the background. That was the only thing I could think of when I was watching her in the harness.

Tuesday, June 23, 2009