M: I will love you for all time.
Me: I will love you for all time to infinity and beyond.
M: What's infinity?
Me: It means forever; there's no end to infinity.
M: Yeah, that's for me too.
Sunday, September 14, 2008
The Fire Song (for Nana)
When asked what to do if she was ever really on fire, M replied, "Sing the song."
Saturday, September 13, 2008
Long, Flowing, Hair Be Gone
on 8/29/08
Of course, after this, she went home, cut it in the front (so now its angled up to her chin) and tried blaming the dog for the big, clump of hair that she "found."
Tuesday, September 9, 2008
Monday, September 8, 2008
One of the Best Things I've Read
Once again from The QC Report:
But if you’re not careful to carve out time there’s never a point where you look at all the things you know and see and have experienced and actually crop the image. There's no room to think this is important and this makes me who I am and this makes me happy in a way I can’t exactly explain.If you have a few moments, check out the entire entry.
Monday, September 1, 2008
Family Pictures
We've had pictures taken of E at 6 (okay really 7) months are are in my Flickr account. You can see them in the previews to the right, or, for just the set, visit -
http://www.flickr.com/photos/46634524@N00/sets/72157607060856949/
I'm woefully behind in posting and have monthly updates to write for both the girls. A little preview....learn about the accidents that M's imaginary friends have been having.
http://www.flickr.com/photos/46634524@N00/sets/72157607060856949/
I'm woefully behind in posting and have monthly updates to write for both the girls. A little preview....learn about the accidents that M's imaginary friends have been having.
Tuesday, July 29, 2008
Branches
Me: So we're going to the Sylvania Branch for COSI on Wheels.
M: Where's the trunk?
Me: Trunk? What trunk?
M: You know, the trunk? Where is it?
Me: [thinking, thinking, thinking] Oh! The Main Library downtown is the trunk.
M: Where's the trunk?
Me: Trunk? What trunk?
M: You know, the trunk? Where is it?
Me: [thinking, thinking, thinking] Oh! The Main Library downtown is the trunk.
Saturday, July 12, 2008
Saying It Better
I love blogs. The list on the sidebar doesn't even touch the bookmarked sites that I have. The ones on the sidebar, though, are ones I read on a regular basis. I tend to be drawn to blogs of knitters, other moms, really good writers, and (just getting into) those who are writing about raising children with special needs, especially Down Syndrome.
Many times, these other bloggers have a way of expressing thoughts, feelings, or experiences in a way that perfectly encapsulates my own. There are two that have resonated with me recently:
**********
The QC Report
Every time we let our children walk away from us, we’re practicing for the time they do it for keeps. And every time we let them go out into the world, even for a short time, some part of our brain thinks “No! Not yet! There’s no way she knows enough. I know for certain I haven’t taught him enough. Did I teach her the eyeball-gouging trick if someone tries to kidnap her? Did I get him to tolerate citrus fruit enough so he won’t die of scurvy? Did I impress upon them how unspeakably fragile I feel when I think about them doing something self-destructive? Does she know how I have never loved anyone on earth the way that I love her? Come back. Come back." (4/10/08 entry)
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Down Blogger
I am a member of more than a few Down syndrome specific sites. I routinely attend the yearly DS Conferences. I know a fair bit about statistics, different kinds of DS, health issues specific to "our kids", etc. In fact, it is rare a day goes by that I don't find myself speaking or typing the words "down syndrome". And yet, DS is such a minor part of who my daughter is in my thinking. I rarely look at her and think "oh, that is because of DS". I don't equate her successes and failures with the number of chromosomes she packs. Even so, I am aware of her genetic makeup deep in my bones, it is there even when it is not in the forefront of my thoughts.
Somehow, I have been able to raise her to be a young lady who happens to be really cute, funny, charming, a bit moody, a third grader, a great reader, a pretty good baseball player, an aspiring artist...who happens to have a little something extra in her genes. In a weird way, DS is everything, and DS is nothing. It colors most of my thinking about her and her future, and still manages to be at the end of a long line of things I think about when I think about her.
It is almost as though the DS is the last hurdle we jump in all cases of trying to give her the life of a normal little girl. Usually, it is along the lines of "How can we make a world that has her pegged as 'that Down syndrome kid' see who she really is. (03/01/08 entry)
**********
Many times, these other bloggers have a way of expressing thoughts, feelings, or experiences in a way that perfectly encapsulates my own. There are two that have resonated with me recently:
**********
The QC Report
Every time we let our children walk away from us, we’re practicing for the time they do it for keeps. And every time we let them go out into the world, even for a short time, some part of our brain thinks “No! Not yet! There’s no way she knows enough. I know for certain I haven’t taught him enough. Did I teach her the eyeball-gouging trick if someone tries to kidnap her? Did I get him to tolerate citrus fruit enough so he won’t die of scurvy? Did I impress upon them how unspeakably fragile I feel when I think about them doing something self-destructive? Does she know how I have never loved anyone on earth the way that I love her? Come back. Come back." (4/10/08 entry)
**********
Down Blogger
I am a member of more than a few Down syndrome specific sites. I routinely attend the yearly DS Conferences. I know a fair bit about statistics, different kinds of DS, health issues specific to "our kids", etc. In fact, it is rare a day goes by that I don't find myself speaking or typing the words "down syndrome". And yet, DS is such a minor part of who my daughter is in my thinking. I rarely look at her and think "oh, that is because of DS". I don't equate her successes and failures with the number of chromosomes she packs. Even so, I am aware of her genetic makeup deep in my bones, it is there even when it is not in the forefront of my thoughts.
Somehow, I have been able to raise her to be a young lady who happens to be really cute, funny, charming, a bit moody, a third grader, a great reader, a pretty good baseball player, an aspiring artist...who happens to have a little something extra in her genes. In a weird way, DS is everything, and DS is nothing. It colors most of my thinking about her and her future, and still manages to be at the end of a long line of things I think about when I think about her.
It is almost as though the DS is the last hurdle we jump in all cases of trying to give her the life of a normal little girl. Usually, it is along the lines of "How can we make a world that has her pegged as 'that Down syndrome kid' see who she really is. (03/01/08 entry)
**********
Friday, July 11, 2008
Golfing Girls
I forgot that we went miniature golfing for Big Daddy's birthday. When doing the June Newsletter, I found these pictures:
It was really hot that day and we were trying to keep E out of the sun as much as possible.
It was fairly successful, if by successful you mean that we skipped a number of holes because good sport(wo)manship was being compromised.
I think it's definitely something we'll try again.
It was really hot that day and we were trying to keep E out of the sun as much as possible.
It was fairly successful, if by successful you mean that we skipped a number of holes because good sport(wo)manship was being compromised.I think it's definitely something we'll try again.
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